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Your support is vital to our work.


Since Action Duchenne was founded in 2001, average life expectancy for people living with Duchenne in the UK, has increased by about a decade. Translarna, the first drug to treat the underlying cause of Duchenne is being received by the 10-15% of people that could benefit from it.


But our work is far from done.


We would like to keep you up to date with our life-changing activities, research updates, campaign objectives and all the work we do to improve the lives and find a cure for all living with Duchenne muscular dystrophy.


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